Product Overview
A Journey in Grief, Growth, Grace and Hope
In October of 2013 an infant is diagnosed with the most common fatal disease of infants, Spinal Muscular Atrophy Type 1. The Halls are told their three-month-old daughter Heidi will lose all ability to move, then to swallow, then to breathe. Heidi is expected to die within about a year of her horrific diagnosis. Juncture at the Still Point is a mother's true story of her baby's terminal diagnosis and the family's scramble to get Heidi into a clinical trial. The book encompasses the difficulties of accepting a terminal diagnosis, daunting medical challenges, and the disability of an infant. It is also a mother's contemplation of grief, growth, and grace. Juncture at the Still Point illustrates the healing powers of literature, spirituality and writing. Finally, as Heidi responds to therapies and the clinical trial drug she receives, it is a journey toward hope in an incredible era of advancements in treatments for medical diseases.
an affective story, filled with bracing candor and elegantly expressed meditation. A profoundly touching remembrance about the transformative power of art and spirituality. --Kirkus Reviews
will appeal to readers who have personally experienced grief, medical challenges, the disability of a child, or have an interest in healing through literature and spirituality... Sandra Jung Hall has written a thoughtful and emotional true story that take the reader along on her family's journey of hope... Highly recommended! --The Columbia Review of Books and Film
Amid disaster and angst are insights on survival, growth, friendships, and more, though... life affirming revelations that make Juncture at the Still Point more than a story of a child's terrible health issues... a powerful, highly recommended read not just for parents struggling with child illness, disability and mortality, but for any who would think about the deeper meaning of life, death and the richness that lies between these juncture points. -- Diane Donovan, Senior Reviewer, Midwest Book Review
